tag:blogger.com,1999:blog-71913588518765289992024-03-13T10:48:33.691-07:00An incredible battle, a journey and a fight.smeg91http://www.blogger.com/profile/08361331052298539984noreply@blogger.comBlogger67125tag:blogger.com,1999:blog-7191358851876528999.post-75833240735088091032016-09-23T01:25:00.000-07:002016-09-23T01:25:05.294-07:00RIP Dalton and Katie <a href="http://www.independent.co.uk/news/world/americas/katie-dalton-prager-real-fault-in-our-stars-couple-cystic-fibrosis-death-a7323961.html">http://www.independent.co.uk/news/world/americas/katie-dalton-prager-real-fault-in-our-stars-couple-cystic-fibrosis-death-a7323961.html</a><br />
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I came across this article and thought I would share it. Sadly, this isn't a heart breaking Hollywood movie but true life. It is very sad that so many young people are dying of this horrid disease, even after being given another chance of life via a transplant.<br />
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I am glad that Katie and Dalton found each and loved each other the way they did. Ellis did all she could to not let CF control her short life It should remind us all to live our lives to the fullest, love, laugh and do what makes us truly happy.<br />
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<br />smeg91http://www.blogger.com/profile/08361331052298539984noreply@blogger.com0tag:blogger.com,1999:blog-7191358851876528999.post-20261290273641234742016-07-21T02:44:00.003-07:002016-07-21T02:44:53.469-07:00My Birthday Wish<a href="http://cybercystic.blogspot.co.za/2016/07/youre-only-allowed-to-die-with-smile-on.html?spref=tw&m=1">http://cybercystic.blogspot.co.za/2016/07/youre-only-allowed-to-die-with-smile-on.html?spref=tw&m=1</a><br />
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So today is my birthday and of course at one point someone will say 'make a wish'. Well I obviously can't get what I really want and that is to hold Ellis again, kiss her, see her smile, look into her lovely brown eyes, hear her voice and her laugh etc etc<br />
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But there is one or maybe two wishes that I could ask for. The first is wishing that a cure be found really soon. Second that more people join the organ donor list.<br />
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I have attached a blog that is written by Ellis's friend Andrew. Sadly he is at the end stage of CF and is in desperate need of a transplant. Reading his words reminds me of how scarey that time was with Ellis.<br />
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So for my birthday I would like you to take a minute to read his blog and hopefully this will encourage you to sign the organ register if you haven't done so already. <br />
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Much love to you all.smeg91http://www.blogger.com/profile/08361331052298539984noreply@blogger.com0tag:blogger.com,1999:blog-7191358851876528999.post-32400414371207664012015-12-12T00:48:00.002-08:002015-12-12T00:48:29.636-08:00Literally paying to stay alive.I thought I would share some information regarding the NHS prescription charges for those suffering with Cystic Fibrosis.<br />
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In 1968 a medical exemptions list was drawn up to allow free prescriptions for those suffering with certain long term life threatening conditions. These conditions included Epilepsy, Diabetes and Addison's disease. So why was CF not on the list? In 1968, when the list was drawn up, most children with CF did not live to become teenagers let alone adults. Fortunately the outlook for those with CF has improved greatly and many do now live into adulthood.<br />
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Unfortunately the medical exemption list has not been properly revised since it was drawn up over 40 years ago. In 2009 Gordon Brown introduced exemption for cancer patients and had promised free prescription for those with long term conditions. Those with CF are still waiting. This means that many are literally paying to stay alive.<br />
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A huge amount of treatments and medications are needed to fight CF. To illustrate this here is a picture showing the oral medication that Ellis took on a weekly basis, 322 in total. This did not include, nebulised and inhaled drugs, nasal sprays, IV antibiotics, food supplements and endless creon capsules.<br />
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<a href="http://2.bp.blogspot.com/-Tt6opjZ8rlk/VmvcWHQmo6I/AAAAAAAAARE/32O9jR_9R0E/s1600/148844_10150112825066369_2004817_n.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="http://2.bp.blogspot.com/-Tt6opjZ8rlk/VmvcWHQmo6I/AAAAAAAAARE/32O9jR_9R0E/s320/148844_10150112825066369_2004817_n.jpg" width="320" /></a></div>
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Please take a moment to sign the petition for those with CF in England to get free prescriptions.<br />
<a href="https://you.38degrees.org.uk/petitions/free-prescriptions-for-cystic-fibrosis">https://you.38degrees.org.uk/petitions/free-prescriptions-for-cystic-fibrosis</a><br />
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<br />smeg91http://www.blogger.com/profile/08361331052298539984noreply@blogger.com0tag:blogger.com,1999:blog-7191358851876528999.post-70582122084738687452015-08-30T12:33:00.002-07:002015-08-30T12:33:48.158-07:005 years ago today, the day our new chapter began......<div class="separator" style="clear: both; text-align: justify;">
<span style="text-align: start;">This day 5 years ago was the day our lives would, once again, begin a new chapter. You see, it was the day that Ellis woke from her heart and double lung transplant. The previous day Ellis had the operation which was particularly difficult due to the severity of her CF lungs and took about 6 hours, which seemed like a lifetime. I remember everything so vividly, what we spoke about prior to her going into theatre, the feelings and thoughts I had, just how surreal and totally unbelievable the whole scenario was. I can still hear the noise of the closing theatre door as the nurse wheeled her in and Ellis waving goodbye to us with her huge, but obviously scared smile. I remember thinking "this might be the last time I ever see that beautiful smile and big brown eyes".</span></div>
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<span style="text-align: start;"> Waiting to go to theatre.</span></div>
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Thankfully that wasn't the case, at about 4.15 Ellis came out of theatre and was taken to her recovery room. And there she lay surrounded by noisy machines and nurses, hooked to endless wires and tubes, needles coming from her wrists and neck. I remember touching her face and holding her hand and not being prepared for how cold she felt, scared that she wasn't breathing as her chest wasn't heaving. She looked more peaceful than I had seen her in a long time as the breathing machine did all the work for her and right there and then I knew she would wake up. At about 10 that evening after numerous conversations with the surgeon and team and out of pure physical and emotional exhaustion, I reluctantly left to get some sleep. </div>
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When I awoke, I instantly called the ward and was told Ellis had awoke at about 2am, that they didn't call as they had lots of checks and tests to do. They assured me she was doing well. I simply can not describe how I felt when I walked in that morning and saw her face. The happiness I could see in her eyes is something I will never forget. To see her breathing on her own, with her new lungs aided by some oxygen, and to feel her skin warming with every beat of her new heart was simply overwhelming. At that moment I thought of her donor laying there whilst her family had to do the unimaginable and say goodbye to her, probably in a similar room to this. I burst into tears, they had lost their loved one but they made the most, generous, courageous and selfless decision to donate her organs and give the gift of life to total strangers. <br />
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Awake after surgery.<br />
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Without her donor and the choice her family made, our new chapter in life would never have begun.<br />
<br />smeg91http://www.blogger.com/profile/08361331052298539984noreply@blogger.com0tag:blogger.com,1999:blog-7191358851876528999.post-19391609164174731522015-07-30T22:26:00.000-07:002015-07-30T22:26:57.270-07:00Happy Birthday Sweetheart xxxxxx<div style="text-align: center;">
You can leave a message or light a candle here xx</div>
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<a href="http://announce.jpress.co.uk/luton-news/birthday-memorial/ellis-natale/42832207?s_source=jpmi_lhp_lun">http://announce.jpress.co.uk/luton-news/birthday-memorial/ellis-natale/42832207?s_source=jpmi_lhp_lun</a></div>
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Happy Birthday Angel xx</div>
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<span style="font-size: 14.0799999237061px; line-height: 1.4;">Happy Birthday up in Heaven,</span></div>
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<span style="font-size: 14.0799999237061px; line-height: 1.4;">that’s where all the Angels go.</span></div>
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<span style="font-size: 14.0799999237061px; line-height: 1.4;">And down here in our hearts,</span></div>
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<span style="font-size: 14.0799999237061px; line-height: 1.4;">your light will always glow.</span></div>
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<span style="font-size: 14.0799999237061px; line-height: 1.4;">Whilst the angels hold you close,</span></div>
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<span style="font-size: 14.0799999237061px; line-height: 1.4;">and sing you a birthday song.</span></div>
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<span style="font-size: 14.0799999237061px; line-height: 1.4;">We will send you lots of love,</span></div>
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<span style="font-size: 14.0799999237061px; line-height: 1.4;">today and all year long.</span></div>
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<span style="font-size: 14.0799999237061px; line-height: 1.4;">Happy Birthday Ellis.</span></div>
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<span style="font-size: 14.0799999237061px; line-height: 1.4;">Love you to the Moon and back.</span></div>
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<span style="font-size: 14.0799999237061px; line-height: 1.4;">Mum, Mani, Mandy and Cáel.</span></div>
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<span style="background-color: transparent;">♥♥❤☆☆★❤★☆❤♥♥</span></div>
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<br />smeg91http://www.blogger.com/profile/08361331052298539984noreply@blogger.com0tag:blogger.com,1999:blog-7191358851876528999.post-3848360614944195612015-07-26T06:37:00.003-07:002015-07-26T07:03:35.857-07:00 Happy birthday my beautiful sister. <div style="text-align: center;">
Your birthday is approaching, it is getting near,</div>
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I wish with all my heart that you were still here.</div>
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You were brave and an inspiration,</div>
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you loved life and never showed your fear.</div>
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I do so wish that I had more time with you,</div>
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you meant the world to me and a lot more too.</div>
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Wherever you are shine down on me bright,</div>
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and enjoy your birthday with all your might.</div>
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May your beautiful soul glow down on me,</div>
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until we are together again laughing happily.</div>
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You was an amazing sister, in fact you were the best,</div>
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then God made you an angel, because you needed to rest.</div>
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Now you are free and out of pain,</div>
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you can spread your wings and fly again.</div>
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Flying up, up high into the sky,</div>
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whilst I stay strong for you and try not to cry.</div>
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I will never stop missing you.</div>
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I will love you forever.</div>
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Happy birthday my beautiful sister.</div>
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❤☆♥☆♥☆❤<br />
Love Mandy.</div>
smeg91http://www.blogger.com/profile/08361331052298539984noreply@blogger.com0tag:blogger.com,1999:blog-7191358851876528999.post-39004170200356478722015-07-02T00:25:00.000-07:002015-07-02T00:25:13.784-07:00A message from Viv. I received this message from Viv, Ellis's former CF paediatric nurse. Viv took care of Ellis pretty much all of the time she was in hospital and they had a great relationship. Feel so humbled that Ellis is remembered so fondly by those that new her.<br />
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Viv's message.<br />
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Today on the 30th June I went on a study day to Newmarket with some other CF nurses. The afternoon presentation was about transplants. A consultant from Papworth, named Helen Barker, gave a talk about patients on the transplants list. She spoke of a case, in 2010, when a young lady was placed on the transplant list, but whilst waiting for a donor she became very unwell and it was decided that patient be given palliative care as there was no suitable organs available. During that evening whilst Helen was writing up the palliative care drugs to keep the patient comfortable, Morphine and Midazolam, the call came saying they may have a potential donor, and the following morning the young lady went to theatre for a heart and double lung transplant! Then a picture appeared of a young lady smiling, post transplant. That young lady smiling down at us all was Ellis!!<br />
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Today the amount of organs available fall far short of the amount of organs required.<br />
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A beautiful young lady missed by many xsmeg91http://www.blogger.com/profile/08361331052298539984noreply@blogger.com0tag:blogger.com,1999:blog-7191358851876528999.post-61548876517533470332015-04-20T11:56:00.003-07:002015-04-20T11:56:46.175-07:004 years ago Ellis was in the local paper. 4 years ago my beautiful Ellis, expressing her happiness at being given the chance to live. Always wanting the simplest things in life and to be able to help others. Will always be so proud of her. Count your blessings people, life is precious xx<br />
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<a href="http://www.lutontoday.co.uk/news/local/transplant_plea_from_survivor_ellis_1_2608845">http://www.lutontoday.co.uk/news/local/transplant_plea_from_survivor_ellis_1_2608845</a>smeg91http://www.blogger.com/profile/08361331052298539984noreply@blogger.com0tag:blogger.com,1999:blog-7191358851876528999.post-34170196112594134272015-04-16T02:09:00.001-07:002015-04-16T02:09:19.631-07:00Three years ago today.Three years ago today. Forever our angel xxx<br />
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<a href="http://announce.jpress.co.uk/lutontodaycouk-and-dunstabletodaycouk/memorial/ellis-natale/41568100">http://announce.jpress.co.uk/lutontodaycouk-and-dunstabletodaycouk/memorial/ellis-natale/41568100</a>smeg91http://www.blogger.com/profile/08361331052298539984noreply@blogger.com0tag:blogger.com,1999:blog-7191358851876528999.post-88529583353753788832015-03-09T04:03:00.000-07:002015-03-09T04:03:44.225-07:00Cáel's thoughts.Cáel has been creating a culture box at school. At discussion time he told his teacher and the class about Ellis. He explained that Ellis couldn't breathe properly and that the doctors couldn't make her better so she passed away and went to heaven. One boy asked if she had cancer, which he replied no and another asked if she could walk and he said sometimes. When asked how it made him feel he said he felt sad because he misses her and that he didn't know her for very long because he was only 4 when she went. The teacher asked him what memories he had that could made him feel happy and he replied all of them. He is such a beautiful boy, I know Ellis would be so proud of him.<br />
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<br />smeg91http://www.blogger.com/profile/08361331052298539984noreply@blogger.com0tag:blogger.com,1999:blog-7191358851876528999.post-90185790359619042972015-01-01T23:02:00.001-08:002015-01-01T23:02:27.147-08:00Thoughts from Miss Joane. At this time of year when people get together to celebrate the holidays, I always think of what we would be getting up to. I miss being with you bringing in the New Year like we did everything else together.I will never find a friend like you in my lifetime and that saddens me greatly. But I am grateful for the time we spent together and the life lessons you taught me, thats the main thing.<br />
Merry Christmas and New Year Ellis.<br />
You mean the world to me.<br />
Love you always and forever.<br />
My BBFL. smeg91http://www.blogger.com/profile/08361331052298539984noreply@blogger.com0tag:blogger.com,1999:blog-7191358851876528999.post-15235020548914826912014-12-24T11:11:00.000-08:002014-12-24T11:11:29.165-08:00Christmas memories from our Jodie x<span style="background-color: #f6f7f8; color: #373e4d; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 12px; line-height: 15.3599996566772px; white-space: pre-wrap;">I want to say an extra special merry Christmas to Ellis. This time of year especially reminds me of Ellis she loved Christmas, we would always have a big get together and get dressed up, some of my fondest memories. I was laughing while putting up my Christmas tree remembering when Ellis lost her phone and found it in the Christmas tree the next year. So to the brightest star up there, our Christmas Angel, merry Christmas Ellis love your ssl </span><span class="_1az _1a- _2hc" style="background-color: #f6f7f8; background-image: url(https://fbstatic-a.akamaihd.net/rsrc.php/v2/yg/r/N74Yz5v6w2Z.png); background-position: 0px -7408px; background-repeat: no-repeat; background-size: auto; color: #373e4d; display: inline-block; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 12px; height: 16px; line-height: 15.3599996566772px; margin: 0px 1px; vertical-align: top; white-space: pre-wrap; width: 16px;"></span><span style="background-color: #f6f7f8; color: #373e4d; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 12px; line-height: 15.3599996566772px; white-space: pre-wrap;"> Xxx</span>smeg91http://www.blogger.com/profile/08361331052298539984noreply@blogger.com0tag:blogger.com,1999:blog-7191358851876528999.post-64672727851630921162014-11-02T23:28:00.001-08:002014-11-02T23:28:10.779-08:00Brittany Maynard<a href="http://www.people.com/article/brittany-maynard-died-terminal-brain-cancer">http://www.people.com/article/brittany-maynard-died-terminal-brain-cancer</a><br />
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I struggle every day with the decision Ellis made to end her journey with us on earth. However much I tell myself that it was her choice, I guess a mum should never have to see her daughter die. I hope Brittany's family are able to find a way of coping. RIP Brittany.smeg91http://www.blogger.com/profile/08361331052298539984noreply@blogger.com0tag:blogger.com,1999:blog-7191358851876528999.post-36924480310379979472014-09-17T03:14:00.000-07:002014-09-17T03:14:27.756-07:00Happy Birthday Jodie x<div class="separator" style="clear: both; text-align: center;">
Ellis and Jodie. Memories will keep you together x</div>
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smeg91http://www.blogger.com/profile/08361331052298539984noreply@blogger.com0tag:blogger.com,1999:blog-7191358851876528999.post-54365680637062104992014-08-01T09:35:00.001-07:002014-08-01T09:35:27.935-07:00What a wonderful, heartwarming end to the day.Yesterday was Ellis's birthday and my dear friend Paula had kindly offered to take Ellis's flowers to the churchyard for me. After laying the flowers on Ellis's 'garden' and tending to her tree, she then had to say a speedy goodbye to Ellis and rush to the hospital to welcome her beautiful newborn baby grand daughter into the world. What a wonderful, heartwarming end to a sad and emotional day!<br />
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Congratulations to Nat and Danielle on the birth of baby Noa Rose Gentle-King.<br />
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I can't wait to see her beautiful little face and will post a photo as soon as possible.<br />
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<br />smeg91http://www.blogger.com/profile/08361331052298539984noreply@blogger.com0tag:blogger.com,1999:blog-7191358851876528999.post-11617893161267732372014-05-30T01:38:00.003-07:002014-05-30T01:38:53.960-07:00Life is Beautiful, in memory of Lauren.This week another of Ellis's lovely friends, Lauren 'Jaffa' Jones, sadly lost her fight against CF at jut 22. I'm not going to go on about the sadness and sorrow and the devastating affects that CF causes, as I'm sure you are all well aware of these by now.<br />
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Instead I am going to tell you about a film that I watched, the day after hearing the sad news. I have seen this film many times and it was probably one of Ellis's all time favourites. Ellis insisted it must be watched in the original form, with subtitles, as she felt it lost it's meaning when the voices were dubbed over. As always she was right.<br />
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Life is Beautiful. Like a fable, there is sorrow and, like a fable, it is full of wonder and happiness.<br />
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<br />smeg91http://www.blogger.com/profile/08361331052298539984noreply@blogger.com0tag:blogger.com,1999:blog-7191358851876528999.post-81021271814850262922014-05-24T03:52:00.003-07:002014-05-24T03:52:42.093-07:00sad :(Strange to see Ellis's friends getting married, buying houses and having babies. All the things our angel will never be able to do. Feeling sad :(smeg91http://www.blogger.com/profile/08361331052298539984noreply@blogger.com0tag:blogger.com,1999:blog-7191358851876528999.post-31919954522086127992014-04-28T14:24:00.000-07:002014-04-28T14:26:04.833-07:00Cáel's memories,Just had a little heart to heart with Cáel as he asked why Ellis had to go to heaven. I explained that Ellis's lungs didn't work properly and as he is a good swimmer he understood that you need air to breath.<br />
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I asked what he remembers about her and not to what he has been told but to think of his memories. He told me that he remembers her Darth Vader mask (nippy) and the special ship (wheelchair) they traveled in. He remembered 'Moucha man' ie Kartek one of the transplant team who had a moustache and the funny lady who used to bring tea and biscuits and dance in the room, after going through photo's he pointed out the lovely Davina. He also spoke of Gary and the drawings they did together. He had some random memories that even I had forgotten, which made me really happy and sad at the same time. Most of all he said that if Ellis loved him when she was here then she would love him now too.<br />
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Remember what is important in life as it may not be with you tomorrow.<br />
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Much love to you all x<br />
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<br />smeg91http://www.blogger.com/profile/08361331052298539984noreply@blogger.com1tag:blogger.com,1999:blog-7191358851876528999.post-11045734567827916942014-03-11T10:49:00.000-07:002014-03-11T10:49:16.078-07:00Remembering the lovely Lisa.One year has passed since another beautiful young lady and very special friend to Ellis passed away. The lovely Lisa, as you may know from previous posts knew Ellis all of her life and was there for her through some very tough times. They laughed together, cried together and shared their CF and transplant lives together, they understood each other like no one else could. <div>
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Miss you Lisa hope you and Ellis are dancing hard. <div>
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smeg91http://www.blogger.com/profile/08361331052298539984noreply@blogger.com0tag:blogger.com,1999:blog-7191358851876528999.post-62081964538682342082014-03-09T23:41:00.000-07:002014-03-09T23:41:40.329-07:00Jordan.It has been 3 years since Jordan passed away, remember so vividly how heart broken you were. We were driving home from Papworth when we found out, I could see the pain and fear in your eyes, you were so devastated, you shouldn't of had to go through all the things you did at such a young age, but I guess that's what made you so strong. You both fought so hard and smiled and laughed through your pain, I can still hear you both laughing now. I miss you so much poppet. Hope you and Jordan are still laughing. xxsmeg91http://www.blogger.com/profile/08361331052298539984noreply@blogger.com0tag:blogger.com,1999:blog-7191358851876528999.post-62302047037813078472014-02-22T05:50:00.001-08:002014-02-22T05:50:51.230-08:00Paul's aka Skinny's London Marathon Challenge.<a href="http://uk.virginmoneygiving.com/fundraiser-web/fundraiser/showFundraiserProfilePage.action?userUrl=Skinny">http://uk.virginmoneygiving.com/fundraiser-web/fundraiser/showFundraiserProfilePage.action?userUrl=Skinny</a><br />
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Our lovely friend Skinny is running the London Marathon in memory of Ellis. When he applied I am sure he didn't think he would get a place, so now well he best run his little socks off.<br />
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Any donations would be greatly appreciated. All Proceeds will go to the CF Trust and our local Keech Cottage Hospice.<br />
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Go Skinny Go. <br />
<br />smeg91http://www.blogger.com/profile/08361331052298539984noreply@blogger.com0tag:blogger.com,1999:blog-7191358851876528999.post-65738408180083801502014-02-12T21:47:00.000-08:002014-02-12T21:47:06.750-08:00Every day my heart breaks. I just want to reach into the photo's of you and give you a big cuddle, look into your beautiful eyes and tell how much I love you. I want to comb your hair and see that bright smile, that could light up a room and hear your laughter. There's so much I never said and did and every day my heart breaks. Life is so unfair, there I said it, the thing I try to avoid. But it's so true and I miss you. smeg91http://www.blogger.com/profile/08361331052298539984noreply@blogger.com3tag:blogger.com,1999:blog-7191358851876528999.post-11574961376312691512014-01-31T23:49:00.000-08:002014-01-31T23:49:06.897-08:00A new chapter.I hope you are all having a wonderful New Year and looking forward to 2014.<br />
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As you have probably noticed I haven't updated the blog on the 16th of each month as I normally do. The thing is, I have had some amazing drams since the start of the new year and I feel it's time for a new chapter, to write when I want to write or have something to say and to try and let go of the emotional ties to specific dates. This may be easier said than done but we will have to wait and see.<br />
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So on the 1st day of the New Year I awoke after having a strange dream that Ellis was taking a test and she went to Lisa for some advice, then a cupboard randomly fell off the wall and Daren came to the rescue and put it back up. They all then went to watch some TV and Gary was with the cast of TOWIE.<br />
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Lisa, Daren and Gary were Ellis's friends, all of them sadly losing their fight after having had lung transplants. The thing is, it felt so real, Ellis would of gone to Lisa for advice as they were friends from childhood, Daren was Ellis's transplant buddy and was very protective of her and Gary, well he loved TOWIE.<br />
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I also had a dream that Ellis was going to get a haircut and our beautiful friend Bibi was taking her. Bibi's car broke down so they got out and began to walk through this field when it started to rain and they were laughing, laughing so loud. Bibi was holding Ellis's hand and wrapping her up in her coat.<br />
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I was so moved by this dream, Bibi was such a wonderful person, whenever Ellis had an unexpected visit to the hospital or when things weren't looking good, I always got a call from her, like she knew instinctively that something was wrong. She died very suddenly in a car crash a month or so before Ellis, so the dream was very significant.<br />
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So here's looking forward to the new chapter's in our lives. We never know what is going to happen tomorrow so try and enjoy today as you won't ever get the chance to again.<br />
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Much Love to you all xxsmeg91http://www.blogger.com/profile/08361331052298539984noreply@blogger.com0tag:blogger.com,1999:blog-7191358851876528999.post-77430681322730530212013-12-24T22:50:00.000-08:002013-12-24T22:50:54.379-08:00Sister Love.<span style="background-color: white; color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 13.333333969116211px; line-height: 18.88888931274414px; white-space: pre-wrap;">We tip toe down stairs to take a peak, it's Christmas morning we're too excited to sleep, </span><br />
<span style="background-color: white; color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 13.333333969116211px; line-height: 18.88888931274414px; white-space: pre-wrap;">there we see them all under the tree, wrapped up presents for you and me.</span><br />
<span style="background-color: white; color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 13.333333969116211px; line-height: 18.88888931274414px; white-space: pre-wrap;">We'd compare our presents, laugh and play just like 2 sisters on an ordinary Christmas Day. </span><br />
<span style="background-color: white; color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 13.333333969116211px; line-height: 18.88888931274414px; white-space: pre-wrap;">Years go by, we grow into our own, even though you are ill I never hear you moan! </span><br />
<span style="background-color: white; color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 13.333333969116211px; line-height: 18.88888931274414px; white-space: pre-wrap;">Now we're older and its Christmas Day we buy each other gifts and they're exactly the same, </span><br />
<span style="background-color: white; color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 13.333333969116211px; line-height: 18.88888931274414px; white-space: pre-wrap;">then You have a transplant a 2nd chance of life and boy aren't you living it, out every night! </span><br />
<span style="background-color: white; color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 13.333333969116211px; line-height: 18.88888931274414px; white-space: pre-wrap;">Now you're loosing your energy you are getting very ill, nothing can cure you not even the pills, </span><br />
<span style="background-color: white; color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 13.333333969116211px; line-height: 18.88888931274414px; white-space: pre-wrap;">you lay there peacefully your life's coming to an end, cystic fibrosis not even the medicine can mend. </span><br />
<span style="background-color: white; color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 13.333333969116211px; line-height: 18.88888931274414px; white-space: pre-wrap;">You are being so brave, inside I want to cry, you're only 20 I'm not ready to say good bye, </span><br />
<span style="background-color: white; color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 13.333333969116211px; line-height: 18.88888931274414px; white-space: pre-wrap;">then I get the phone call you have fallen asleep your out of pain now and you are at peace. </span><br />
<span style="background-color: white; color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 13.333333969116211px; line-height: 18.88888931274414px; white-space: pre-wrap;"><br /></span>
<span style="background-color: white; color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 13.333333969116211px; line-height: 18.88888931274414px; white-space: pre-wrap;">Nearly 2 years have gone by since you became an angel in heaven and I miss everything about you every day love you always. </span><span style="background-color: white; color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 13.333333969116211px; line-height: 18.88888931274414px; white-space: pre-wrap;">You are out of pain now and at rest, it certainly is true god only takes the best!</span><br />
<span style="background-color: white; color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 13.333333969116211px; line-height: 18.88888931274414px; white-space: pre-wrap;"><br /></span>
<span style="background-color: white; color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 13.333333969116211px; line-height: 18.88888931274414px; white-space: pre-wrap;">Love you always your big sister Mandy.</span><br />
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<span style="background-color: white; color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 13.333333969116211px; line-height: 18.88888931274414px; white-space: pre-wrap;"><br /></span>smeg91http://www.blogger.com/profile/08361331052298539984noreply@blogger.com0tag:blogger.com,1999:blog-7191358851876528999.post-65918338905296291202013-12-16T07:39:00.000-08:002013-12-16T07:39:06.775-08:00Merry Christmas and Happy New Year.I would like to dedicate this post to three of Ellis's friends, each of them suffer from CF and were all awaiting lung transplants. Within a few weeks of each other they all received the gift of life and are making amazing recoveries. So Bernice, Emily and the Lovely Laura I'm praying you continue to have a speedy recovery and happy and blessed life.<br />
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Of course we must also remember the brave and courageous decision that the donor families made, in their time of loss and sadness. I hope they can take some comfort in knowing how important their decision was and what a difference it has made.<br />
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Merry Christmas and Happy New Year.smeg91http://www.blogger.com/profile/08361331052298539984noreply@blogger.com0