A message from Viv.

I received this message from Viv, Ellis's former CF paediatric nurse. Viv took care of Ellis pretty much all of the time she was in hospital and they had a great relationship. Feel so humbled that Ellis is remembered so fondly by those that new her.

Viv's message.

Today on the 30th June I went on a study day to Newmarket with some other CF nurses. The afternoon presentation was about transplants. A consultant from Papworth, named Helen Barker, gave a talk about patients on the transplants list. She spoke of a case, in 2010, when a young lady was placed on the transplant list, but whilst waiting for a donor she became very unwell and it was decided that patient be given palliative care as there was no suitable organs available. During that evening whilst Helen was writing up the palliative care drugs to keep the patient comfortable, Morphine and Midazolam, the call came saying they may have a potential donor, and the following morning the young lady went to theatre for a heart and double lung transplant! Then a picture appeared of a young lady smiling, post transplant. That young lady smiling down at us all was Ellis!!

Today the amount of organs available fall far short of the amount of organs required.

A beautiful young lady missed by many x

4 years ago Ellis was in the local paper.

4 years ago my beautiful Ellis, expressing her happiness at being given the chance to live. Always wanting the simplest things in life and to be able to help others. Will always be so proud of her. Count your blessings people, life is precious xx

http://www.lutontoday.co.uk/news/local/transplant_plea_from_survivor_ellis_1_2608845

Three years ago today.

Three years ago today. Forever our angel xxx

http://announce.jpress.co.uk/lutontodaycouk-and-dunstabletodaycouk/memorial/ellis-natale/41568100

Cáel's thoughts.

Cáel has been creating a culture box at school. At discussion time he told his teacher and the class about Ellis. He explained that Ellis couldn't breathe properly and that the doctors couldn't make her better so she passed away and went to heaven.  One boy asked if she had cancer, which he replied no and another asked if she could walk and he said sometimes. When asked how it made him feel he said he felt sad because he misses her and that he didn't know her for very long because he was only 4 when she went. The teacher asked him what memories he had that could made him feel happy and he replied all of them. He is such a beautiful boy, I know Ellis would be so proud of him.

Thoughts from Miss Joane.

At this time of year when people get together to celebrate the holidays, I always think of what we would be getting up to. I miss being with you bringing in the New Year like we did everything else together.I will never find a friend like you in my lifetime and that saddens me greatly.  But I am grateful for the time we spent together and the life lessons you taught me, thats the main thing.
Merry Christmas and New Year Ellis.
You mean the world to me.
Love you always and forever.
My BBFL.  

Christmas memories from our Jodie x

I want to say an extra special merry Christmas to Ellis. This time of year especially reminds me of Ellis she loved Christmas, we would always have a big get together and get dressed up, some of my fondest memories. I was laughing while putting up my Christmas tree remembering when Ellis lost her phone and found it in the Christmas tree the next year. So to the brightest star up there, our Christmas Angel, merry Christmas Ellis love your ssl Xxx

Brittany Maynard

http://www.people.com/article/brittany-maynard-died-terminal-brain-cancer

I struggle every day with the decision Ellis made to end her journey with us on earth.  However much I tell myself that it was her choice, I guess a mum should never have to see her daughter die. I hope Brittany's family are able to find a way of coping. RIP Brittany.