Friday 23 September 2016

RIP Dalton and Katie

http://www.independent.co.uk/news/world/americas/katie-dalton-prager-real-fault-in-our-stars-couple-cystic-fibrosis-death-a7323961.html

I came across this article and thought I would share it. Sadly, this isn't a heart breaking Hollywood movie but true life. It is very sad that so many young people are dying of this horrid disease, even after being given another chance of life via a transplant.

I am glad that Katie and Dalton found each and loved each other the way they did. Ellis did all she could to not let CF control her short life  It should remind us all to live our lives to the fullest, love, laugh and do what makes us truly happy.




Thursday 21 July 2016

My Birthday Wish

http://cybercystic.blogspot.co.za/2016/07/youre-only-allowed-to-die-with-smile-on.html?spref=tw&m=1

So today is my birthday and of course at one point someone will say 'make a wish'. Well I obviously can't get what I really want and that is to hold Ellis again, kiss her, see her smile, look into her lovely brown eyes, hear her voice and her laugh etc etc

But there is one or maybe two wishes that I could ask for. The first is wishing that a cure be found really soon. Second that more people join the organ donor list.

I have attached a blog that is written by Ellis's friend Andrew. Sadly he is at the end stage of CF and is in desperate need of a transplant. Reading his words reminds me of how scarey that time was with Ellis.

So for my birthday I would like you to take a minute to read his blog and hopefully this will encourage you to sign the organ register if you haven't done so already.  

Much love to you all.