Thursday, 30 July 2015

Happy Birthday Sweetheart xxxxxx

You can leave a message or light a candle here xx

Happy Birthday Angel xx

Happy Birthday up in Heaven,
that’s where all the Angels go.
And down here in our hearts,
your light will always glow.

Whilst the angels hold you close,
and sing you a birthday song.
We will send you lots of love,
today and all year long.

Happy Birthday Ellis.
Love you to the Moon and back.
Mum, Mani, Mandy and C√°el.

Sunday, 26 July 2015

Happy birthday my beautiful sister.

Your birthday is approaching, it is getting near,
I wish with all my heart that you were still here.
You were brave and an inspiration,
you loved life and never showed your fear.
I do so wish that I had more time with you,
you meant the world to me and a lot more too.
Wherever you are shine down on me bright,
and enjoy your birthday with all your might.
May your beautiful soul glow down on me,
until we are together again laughing happily.
You was an amazing sister, in fact you were the best,
then God made you an angel, because you needed to rest.
Now you are free and out of pain,
you can spread your wings and fly again.
Flying up, up high into the sky,
whilst I stay strong for you and try not to cry.
I will never stop missing you.
I will love you forever.
Happy birthday my beautiful sister.
Love Mandy.

Thursday, 2 July 2015

A message from Viv.

I received this message from Viv, Ellis's former CF paediatric nurse. Viv took care of Ellis pretty much all of the time she was in hospital and they had a great relationship. Feel so humbled that Ellis is remembered so fondly by those that new her.

Viv's message.

Today on the 30th June I went on a study day to Newmarket with some other CF nurses. The afternoon presentation was about transplants. A consultant from Papworth, named Helen Barker, gave a talk about patients on the transplants list. She spoke of a case, in 2010, when a young lady was placed on the transplant list, but whilst waiting for a donor she became very unwell and it was decided that patient be given palliative care as there was no suitable organs available. During that evening whilst Helen was writing up the palliative care drugs to keep the patient comfortable, Morphine and Midazolam, the call came saying they may have a potential donor, and the following morning the young lady went to theatre for a heart and double lung transplant! Then a picture appeared of a young lady smiling, post transplant. That young lady smiling down at us all was Ellis!!

Today the amount of organs available fall far short of the amount of organs required.

A beautiful young lady missed by many x