Well another month has passed by, time is going too quickly. Soon it will be Christmas which I am really not looking forward to then before we know it, it will be coming up for a year. A whole year, it just seems so unreal! I had found myself wallowing a bit so I finally pulled my finger out and with a little help of some friends, set up 'Everything Ellis'.
The aim is to raise lots of money for the charities that Ellis supported and we are starting with the CF Trust and the Luton & Dunstable Hospital Childrens Wards. We are kicking the events of with a Disco on the 14th December. An old friend of mine, Michael, who is a DJ, has very kindly offered his services for free. We have some great raffle prizes have some great stuff to Auction. The amount of support which we have received has been overwhelming and I am sure it is going to be a fantastic night. Tickets are £5 and can be purchased on line (link below) If you can't make it but would like to donate a little amount you can do that too. I'm sure it will be a little emotional too as it is being held in the hall that Ellis celebrated her 18th Birthday and Daren is going to sing Ellis's song. Get the tissues ready !!
Over the last few weeks I have also met some amazing people online, who sadly have also lost their children due to CF or lack of organs being available for donation. It's kind of sad knowing that others are feeling the same pain as me but also kind of comforting too. I would also like to mention Ellis's friend Kerry who at just 21 is in desperate need of a lung transplant, please spare a thought or a prayer for her.
Finally Mandy, Ellis's sister, was reminiscing with Jodie their lifelong friend, about a game they used to play when they were young called 'what's wrong with me'. So two of them would leave the room whilst the other would put their top on inside out or change their socks and the others would have to guess what was wrong. When it was Ellis's turn she wouldn't change anything and after Mandy and Jodie failed to guess Ellis would just laugh and say 'whats wrong with me - I've got CF' it would get them every time. Just shows what an amazing sense of humour Ellis had even at such a young age.