Life is Beautiful, in memory of Lauren.

This week another of Ellis's lovely friends, Lauren 'Jaffa' Jones, sadly lost her fight against CF at jut 22. I'm not going to go on about the sadness and sorrow and the devastating affects that CF causes, as I'm sure you are all well aware of these by now.

Instead I am going to tell you about a film that I watched, the day after hearing the sad news. I have seen this film many times and it was probably one of Ellis's all time favourites. Ellis insisted it must be watched in the original form, with subtitles, as she felt it lost it's meaning when the voices were dubbed over. As always she was right.

                                                            Life is Beautiful.                                                           Like a fable, there is sorrow and, like a fable, it is full of wonder and happiness.

sad :(

Strange to see Ellis's friends getting married, buying houses and having babies. All the things our angel will never be able to do. Feeling sad :(

Cáel's memories,

Just had a little heart to heart with Cáel as he asked why Ellis had to go to heaven. I explained that Ellis's lungs didn't work properly and as he is a good swimmer he understood that you need air to breath.

I asked what he remembers about her and not to what he has been told but to think of his memories. He told me that he remembers her Darth Vader mask (nippy) and the special ship (wheelchair) they traveled in. He remembered 'Moucha man' ie Kartek one of the transplant team who had a moustache and the funny lady who used to bring tea and biscuits and dance in the room, after going through photo's he pointed out the lovely Davina. He also spoke of Gary and the drawings they did together. He had some random memories that even I had forgotten, which made me really happy and sad at the same time. Most of all he said that if Ellis loved him when she was here then she would love him now too.

Remember what is important in life as it may not be with you tomorrow.

Much love to you all x

Remembering the lovely Lisa.

One year has passed since another beautiful young lady and very special friend to Ellis passed away. The lovely Lisa, as you may know from previous posts knew Ellis all of her life and was there for her through some very tough times. They laughed together, cried together and shared their CF and transplant lives together, they understood each other like no one else could. 

Miss you Lisa hope you and Ellis are dancing hard.   

Jordan.

It has been 3 years since Jordan passed away, remember so vividly how heart broken you were. We were driving home from Papworth when we found out, I could see the pain and fear in your eyes, you were so devastated, you shouldn't of had to go through all the things you did at such a young age, but I guess that's what made you so strong.  You both fought so hard and smiled and laughed through your pain, I can still hear you both laughing now. I miss you so much poppet. Hope you and Jordan are still laughing. xx

Paul's aka Skinny's London Marathon Challenge.

http://uk.virginmoneygiving.com/fundraiser-web/fundraiser/showFundraiserProfilePage.action?userUrl=Skinny

Our lovely friend Skinny is running the London Marathon in memory of Ellis. When he applied I am sure he didn't think he would get a place, so now well he best run his little socks off.

Any donations would be greatly appreciated. All Proceeds will go to the CF Trust and our local Keech Cottage Hospice.

Go Skinny Go.

Every day my heart breaks.

I just want to reach into the photo's of you and give you a big cuddle, look into your beautiful eyes and tell how much I love you. I want to comb your hair and see that bright smile, that could light up a room and hear your laughter. There's so much I never said and did and every day my heart breaks. Life is so unfair, there I said it, the thing I try to avoid. But it's so true and I miss you.