Thursday, 12 April 2012

Ellis's wishes.

Well everyone, Ellis has asked that I (mum) update her blog.

As you may be aware Ellis elected to come to Hotel Papworth yesterday afternoon, after much thought and deliberation Ellis decided that she no longer wanted to continue treatment. Mainly because they have not really been effective over the past few weeks and daily chores have become extremely difficult. This decision wasn't taken lightly, but as you guys will also know, The only way is Ellis!

So Ellis is now chilled, eating ice lollies, relaxing and of course listening to her beloved music & as expected she has been as brave and outspoken as ever, (ashamed to say the same can't be said for us though).

Her beloved little brother Cael is safe and sound at his aunties & Ellis has spoken to him on the phone, telling him how much she loves him and to be a good boy. Mandy, sis, was with her last night with some close family and friends who she loves dearly.

For the first time in quite a long while Ellis is happy, relaxed, breathing easy and in no pain. However hard, we know this IS the right decision.

Finally, Ellis wants me to express her gratitude & love to you all for your support & comments, as this helped her through her journey greatly.

Thanks all.




  1. Hey Ellis(' Mum). I know we only met briefly that one time at Jenni's party but I just wanted to let you know I'm thinking of you and sending my best wishes.
    I hope everything goes exactly the way you want it to.

  2. Thinking of you all, Ellis you have grown into a remarkable young lady, your mum must be so proud. You were always one of my favourites due to your cheerfulness, honesty, resilience and quiet determination as well as generally being a lovely girl! Enjoy the lollies and music! Hayley Standaloft xxxxxx

  3. PS I know as teachers we shouldn't admit to having favourites but there you have it! Your blog is amazing, you really are remarkable and am so pleased to see how your brilliant personality has shone through and kept you going. Take care xxxxx

  4. I just wanted to leave a comment as I found your blog through Tori & have been reading back through the previous posts. I've had a transplant myself but different organs. Thanks for sharing your journey with such honesty.

  5. Just wanted to say thank you for all of your lovely comments x Especially to Mrs Standaloft who Ellis always remembered as her favourite teacher. Thanks again x Jo x